"Acceptance and Adaptabilty"
3 users agreeVisit Date: July 2017
This visit included a person who uses: Walking AidOverview
I have Menieres Disease, a hidden disability that profoundly affects my life and what I am able to do. I was very wary about going on a writing course but had wanted to do one for such a long time that I booked anyway knowing I might have problems with noise (hypercusis) and other triggers for an attack. From the beginning my needs were listened to and acted on by the staff - including a ground floor room near a loo. Once I was there and I had severe problems with noise (16 people all talking at once is like a bomb going off for me). I didn't have to explain or defend myself but just ate on my own in the kitchen which helped a lot (isolating myself for health reasons and feeling isolated are very different things). I managed to take part in all the other activities with some adaptations most of which I didn't even have to ask for, they were just there. Like a high backed chair in the Hobbit house so I could support my head. The tutors were brilliant at including me as were the other members of the course. However it was the Moniack staff that made my week so easy and comfortable. I never had to explain myself. I can’t emphasise how amazing it was not to have to go into long winded explanations (that nobody really understands or even believes) just to get what I need. It made everything so much easier and I can’t tell you how rare that is. To be trusted that I know my own capabilities and what I can and cannot tolerate. Adaptability was the key to a great week. We just figured it out together without any fuss and I never found them patronising in any way. Communication is the most important thing with any disability and I was able to talk to all the staff about any issues I had without feeling like an idiot. If you have a vestibular or similar condition and you want to write then I would definitely recommend Moniack Mohr. Just let them know what you need and be assured that anything can be adapted to your needs with the least amount of fuss. Compared to the problems I encounter on a daily basis with work, for instance, Moniack Mohr staff were a revelation.
Anything else you wish to tell us?
If you have a condition where you can become extremely dizzy out of the blue then communication and understanding are key and I got that in spades from Moniack mohr. It's so rare, this understanding and acceptance. I can't tell you how rare. In fact this is probably the first time I've ever experienced it without having to turn myself in knots to explain or defend my disability. Normally I just get extremely upset. At Moniack I felt looked after but not smothered or patronised. WOW!